Friday, October 22, 2010

Xander Takes a Ride with Surfers Healing

Every year an amazing group travels around the country and world to provide people with autism and their families a fantastic day at the beach. The group is called Surfers Healing. It is made up of incredible volunteers who do everything from checking people in to taking people with autism surfing. The families and their children are treated with respect. It's a safe haven where there are no judgements, only love, joy and acceptance. For more information on Surfers Healing, click on the picture of Xander and Izzy from 2008.


This was Xander's 4th year and it was the first time he actually put his feet on the board. In the past, he would lift his feet up so his surfer would have to carry him the entire time. Another wonderful year.

Thank you, Surfers Healing, for all you do!

Thursday, October 21, 2010

Who am I? Special Needs Blog Hop 2

I've hooked up on a Special Needs Blog Hop and am really enjoying the different blogs I've discovered through it. I was, as always, a little unclear as to what I was supposed to do. I posted the button and answered the question of the week in the comment section for Autism Learning Felt. Oops. It seems I was to blog the answer.

So here goes: Who am I?
Good question. I'm not sure I have the answer myself. I am a wife, mother of two who enjoys potty humor much more than I should and am seriously in need of a nap . I'm fiercely loyal. I was recently diagnosed with ADD. This comes as no surprise to anyone who knows me. My husband is fantastic and somehow manages to tolerate Spencer and me with quite a sense of humor. Xander, my 7yr old, is basically Andy with autism. Spencer, my 4yr old, is me only male, more enthusiastic and much smarter. Click HERE for a better understanding of my boys.

What is my blog about?
Honestly, it's a mixed bag. I just blog when something strikes my fancy or pisses me off. A good portion of it deals with autism.

To join the Special Needs Blog Hop, click the picture below and follow the instructions.

Wednesday, October 20, 2010

I like Stephanopoulos

Spencer and I were watching GMA this morning. George Stephanopoulos was interviewing Mayor Daley of Chicago and I made a comment about how charismatic Mayor Daley is. Spencer responded with, "I like Stephanopoulos." I was a little taken aback, first, because he could pronounce "Stephanopoulos" with such ease and second, because he knew who "Stephanopoulos" was. Here's the conversation that followed.

Me: "Ok, why?"
Spencer: "Because Stephanopoulos is cool."
Me: "What makes him cool?"
Spencer: "He's wearing a fancy shirt."
Me: "Is that all?"
Spencer: "And I like his eyes and he's wearing a purple tie."
Me: "Anything else?"
Spencer: "Nope."
Me: "Fair enough."

So, Mr. Stephanopoulos, it seems you have a fan in a 4yr old boy. Rock on, George.

Blogging for Autism

Tammy from the Autism Learning Felt has a great idea about blogging for autism. I won't be silent; however, I will be blogging. Check it out by clicking on the picture below:


Friday, October 15, 2010

Hot Buttons

I blatantly stole this quote from jillsmo's blog, Yeah, Good Times.

"Try to keep up: The dehumanizing bigotries that fall from the lips of “faithful Christians,” and the lies about us that vomit out from the pulpits of churches that “faithful Christians” drag their kids to on Sundays, give your children license to verbally abuse, humiliate, and condemn the gay children they encounter at school. And many of your children—having listened to Mom and Dad talk about how gay marriage is a threat to family and how gay sex makes their magic sky friend Jesus cry—feel justified in physically abusing the LGBT children they encounter in their schools. You don’t have to explicitly “encourage [your] children to mock, hurt, or intimidate” queer kids. Your encouragement—along with your hatred and fear—is implicit. It’s here, it’s clear, and we’re seeing the fruits of it: dead children."  -  Dan Savage    

Homophobia and bullying are two of my biggest hot buttons. Both piss me off to no end.

This is one of my new favorite PSA's. It is NSFW if your work doesn't allow swearing. Sorry if you're offended....not really.
http://www.youtube.com/watch?v=ohybtaEsOCM

Tuesday, September 28, 2010

Autism is not an excuse...

Xander was puh-issed at me yesterday morning. We made the decision that he needed to start eating in the kitchen (which he hasn't done in over a year). He kicked, screamed and then tried to injure himself, first with a pen, then with his toast and finally by hitting himself. Not happy in the least. He finally calmed down some and ate his breakfast while bitching the whole time. I was so happy when the school bus came. Thank goodness he has a wonderful bus driver who won't let him get away with anything.

One of my big pet peeves is someone using his/her child's autism as an excuse for bad behavior. There's a difference between misbehaving and autistic behavior. Xander was misbehaving when he fought, kicking and screaming, eating in the kitchen. He reacted with autistic behavior, which was self-injury. I'm not doing Xander any good by letting him get away with things because of the way he might react. I still made him eat at the table last night and today knowing he may have an adverse reaction. It can be very difficult because I hate it when he has a melt-down. I still stick to my guns.

I never punish Xander for sensory reactions. He can't handle certain sounds and he can't control that. I love that he flaps and spins when he's happy or excited. He can, however, control how close he gets to people or how loudly he speaks. I just need to remind him, nicely but firmly, that he shouldn't touch people he doesn't know or yell loudly about how the boy in the next aisle needs a time-out (which I think is hilarious, but I don't let him know that). I wouldn't let Spencer get away with such behaviors so why should I let Xander?

I'm sorry if this seems like a lecture; I live in an area with a large autism community and there are parents that allow their children to get a way with anything because they have autism. I understand it's hard, BELIEVE me, I do; however, letting a child grab people's food or throw things on the floor at a store because one is afraid of his/her child's reaction is rewarding bad behavior. A neurotypical child will do the same thing if they think they can get away with it with no repercussions. I absolutely agree with Temple Grandin that teaching a child good manners is one of the most important things you can do for him or her.
 
Xander ate dinner in the kitchen last night and for breakfast this a.m. with no fight. He was a little annoyed when we made him wait 'til everyone else was done before excusing him.

Sunday, August 1, 2010

Pray for Tina

Tina Nealon Ilapit is a mother, wife, daughter, sister, friend and my cousin. She has been with the love of her life, Bruce, since she was 13. They celebrate their 20th anniversary this year. She has 2 beautiful children, Quinn, who will be 11 in a few days and Laina, who is 9. She is beautiful, generous and a joy to be around.

She is fighting for her life.

She was diagnosed with breast cancer when she was 24 and again at 31. The first time took a lump, the second time took both her breasts. The threat of cancer returning took her ovaries and uterus. In May of this year, it took a good chunk of her liver when she was diagnosed with stage 4 liver cancer. She is 39. Cancer has been stealing pieces of her for the last 15 years. She has suffered through all of this with dignity and grace. Her thoughts are for her family and friends.

Here is my request to you:
Pray for Tina

Pray for her family, pray for her friends. It doesn't matter if you're religious or not, good thoughts go a long way for healing. You might not know her, but she could be your mother, your sister, your daughter, your wife, your cousin. She is in the hospital right now fighting and needs all the positive energy she can get. Her body may be frail, but her will is strong. She is amazing and I love her.

Update 2/19/11:
Tina passed away yesterday evening surrounded by her family. Thank you for all the well wishes.